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Meet Our Users

Darren shares what it was like to be diagnosed with an IBD and how he managed his health and lifestyle with the support of the IBD Support Australia online community.

Amy is a young mum with IBD and talks about sharing her pregnancy experience with the online community at IBD Support Australia.

Peter is an avid cyclist and talks about how the community at IBD Support Australia helps people living with IBD.

User Stories

Jo

Hi, my name is Jo and I was diagnosed with Crohn's disease in 2004. After my diagnosis, I searched online for more information and came across IBD Support Australia in its early stages and have...

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Hi, my name is Jo and I was diagnosed with Crohn's disease in 2004. After my diagnosis, I searched online for more information and came across IBD Support Australia in its early stages and have been an active member ever since. I was nominated as a moderator shortly after joining and am now a part of the committee to keep our site running.

The forum has helped me many times over the years. By talking to people in similar situations and asking for advice on different medications and symptoms, it has helped me continue full time work for the majority of the time I have been sick.

In 2010, my Crohn's got so bad that I had no choice but to have surgery. I was 30 years old, needed six months off work and started to doubt if I would ever be well enough to look after a child, let alone fall pregnant in the state that I was in. I needed medication for a week and two blood transfusions to be able to bring my levels up to a range the doctors were happy with.

In less then 12 months after my surgery, my husband and I found out I was pregnant with our first child. We couldn't believe our lives had turned around in such a positive way after a short amount of time! Throughout my pregnancy my Crohn's stayed in remission, although I didn't get away too easily and still had all the normal pregnancy complaints about sore back, swollen feet and two months of braxton hicks contractions! Now, I am able to pass on my pregnancy story to others on the forum and provide hope that they might be as lucky as us.

Nine months later, I gave birth to a healthy and beautiful baby girl by natural labour. After an iron infusion, all my blood tests were within normal range and at this stage, there is no sign of my Crohn's.

Even the doctors were surprised that we didn't need any help to fall pregnant after what I had been through. Bonnie is now four months old and our little miracle. We can't believe how lucky we are. Living with an IBD has been challenging at times but thanks to the support of the IBD Support Australia community, I have a group of friends who can help me in my time of need.

I am forever grateful for the forum and will always be part of the IBD online family!

Disclaimer: This website should not be used in place of medical advice, and caution should be used when reviewing any material published online through any source. Always check with your relevant medical professional before making any changes to your treatment or lifestyle.
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